Great balls of FIRE!
168 months.
I experienced crippling, life-interferring, fainting at the mall, up all night sobbing, want to DIE pain for approximately the last 168 months of my life. Some months were better than others. Some months were almost more than I could bear. It was unrelenting.
I can’t put into words how horrible and disheartening it’s felt to be told by doctors that “everyone is uncomfortable during periods” or to have peers look at me with disbelief and a “suck it up” look on their face.
A few months ago, around 2:30 in the morning, when I stumbled upon the truth about endometriosis, the symptoms, and the likelihood that this disease- undiagnosed by any of the several providers I’d seen since puberty began- was the source of my continual pain and problems, I wept.
I cried for hours.
I cried while reading the symptoms. I cried while reading the statistics. I cried when I started reading the stories of women like me who had suffered with out help, without a diagnosis for YEARS, and sometimes DECADES before the right doctor told them about this disease and helped them take the next steps. That night I read a statistic somewhere that said that, on average, women with endometriosis suffer for 12 years before getting treatment.
I was over that average.
That night, I became determined to find a doctor who cared about this disease. Because, unfortunately, the big business is birthing babies, not pelvic pain… frankly, most doctors just don’t keep up with their endo studies. And that’s a shame.
…
Who wants to talk about hot flashes?!

The pain of endo is caused because these cells, which grow all over places they don’t belong (including on intestines, fallopian tubes, ovaries, appendices, just to name a few) are highly responsive to hormones. In the presences of the hormones by body produces naturally, these cells react (usually during a woman’s cycle) and become painful.
While excising the cells, and removing what can be seen through laparoscopic surgery is a way to remove some of the problem, it doesn’t SOLVE the WHOLE problem.
Much like when cancer cells are removed, and chemo/radiation treatment is used to ensure that any cells that are left behind are extinguished, cutting edge endometriosis treatment has another step too.
By taking the drug, Lupron, my hormones are stopped, which will hopefully cause any remaining endometriosis to keel over and die… or at least shrink…
But, for those of you keeping score, if my hormones are taken out of the picture, that means that I’m entering a medicinally induced state of menopause.
Of course, the perks of that could include an absence of the excruciating, and chronic pain that has plagued me for the last 14 years. The downside is… FREAKING MENOPAUSE! Hot flashes, mood swings, bone loss… oh my.
I find it pretty hilarious that yesterday, I blogged about all of this nonsense, and that very night, I had my first hot flash.
Ohmygod. It felt like I was a pot of water and someone had turned the burner to high. It crept up before I even realized it, and all I could do was RIP my sweater off as fast as I could and grab my sweet Spanish fan.
Honestly, I laughed. I laughed a lot… because it’s funny, I guess. Being suddenly slammed with this radiating heat!? Out of nowhere, wanting to hurl the cats to the opposite side of the room like little furry footballs, because their cuddling just contributed to your sudden skin melting temperature change…
Hahahaaaa. Anyway,
I hope this post wasn’t too alienating. Anyone stick with me through this one? I hope so.
The Fitaversary That Wasn’t
(This is going to be a long one… and a personal one… just fair warning.)
Several years ago, I decided to get healthy…
I lost just under 40 lbs, and have kept it off.
I celebrated each year, on my “Fitaversary” and relished in the pride of keeping up with my healthfulness for another year.
A couple of years ago, in November, I got plantar fasciitis which ended my dedicated running endeavors (not because I can’t ever run again, but because it derailed my streak… what can I say?)… I did a few musicals after that, and as my weight stayed down, I stopped being terribly interested in regular workouts. Not that I don’t understand that they’re important, but I just lost focus, I guess… It became really easy to just feel like, “well, my weight’s the same, so why bother getting sweaty”.
This November, I didn’t celebrate a fitaversary… and I wanted to tell you why.
A couple of months ago, I encountered and faced a new opponent that changed my health game yet again.
After 14 years of constant problems during my monthly cycle, I finally found a doctor who identified by previously un-named problem.
Endometriosis.
At LEAST 6 million women in the United States have this disease (The Endometriosis Association -www.killercramps.org).
You may have heard of endometriosis, but you likely have a very foggy understanding of what this condition actually is.
Thousands more are yet undiagnosed, and untreated, (as I was) because many doctors simply are under-educated about this mysterious and complicated disease.
A simple way of describing endometriosis is to say that uterine cells, growing outside of the uterus cause incredible, chronic pain which often accompanies a woman’s period. Symptoms include intense pain during menstruation, back pain, fatigue, GI issues, and in my case, regular monthly fainting spells.
When I finally found my doctor, and found that he was a specialist who not only completely understood how intensely endo had been interfering with my life, but also had a plan for treatment, I was elated.
This fall, I decided to undergo a laparoscopic surgery, which would allow my doctor to excise endometrial cells from wherever they’d been growing in my abdomen.
Anyway, the procedure went well, and I’m recovering nicely. I have three little scars on my abdomen, but I’m sure they’ll fade over time.
I was tended to by my unbelievable selfless husband. Honestly, I can’t put into words how it felt to be so vulnerable to someone, and to trust so completely that they’ve got your back 100%. I have to say that the connection to my hubby was probably the biggest surprise blessing of the whole thing.
The second phase of treatment involves inhibiting my body’s ability to produce the hormones that cause endometrial cells to grow.
This part of the process is a little bit scary, as the medicine carries with it some potentially troubling side effects.
I haven’t decided exactly how candid I want to be about this phase of treatment, because… I don’t know. It’s scary to share personal information. You never know how people will react, what people will say, who will make judgements about your life. And this part of treatment is… complicated. So, I think I’m going to leave it at that for now.
The point is that during this part of treatment, I’m going to have to fight for my health.
If I don’t want to devolve into a pudgy, out of breath, busted up version of who I’ve become, I’m going to have to really work hard…
Because it is SO EASY TO BE LAZY.
So, I hope that this year I’ll regain some of my FITNESS…
I don’t give a crap about my weight. Weight is a ridiculous number, and in my case, it’s virtually a constant. I just want to feel fit again, and feel strong again.
I’m going to be combatting, not only laziness, but changes to my mood and disposition, and the last thing I need is to get all flabby AND depressed.
I’ve had a hard time deciding how to keep blogging.
Truth be told, I love blogging, but it’s hard when what you want to share is really personal. Because you don’t know who’s reading, who’s on your side, and who’s going to give a crap and care about going through your journey with you.
But, I can’t deny that when I’m blogging, I’m distinctly more accountable… and distinctly more likely to keep up with my commitments.
So, I’m going to try. REALLY HARD.
And I hope you’ll be interested in keeping up with my progress.
(Special squishy hugs to my girls, Devon – from “Confections of a Food Bitch” and Jessica from “Let’s Get Fit” who are two of my oldest blogging buddies. They’ve both posted this week after long absences, and they both inspired me to dust off the old keyboard, put on my big girl panties and share what I’m going through even though I’ve been silent. So, thanks to both of you for the inspiration… yet again.
)





